The Johns Hopkins University School of Medicine & Berman Institute of Bioethics, Baltimore
The Big Picture Project
The Big Picture Project has three primary goals which focus on supporting 1) families, 2) individual clinicians, and 3) medical teams as they engage in longitudinal communication and decision-making for infants with congenital heart disease. The Family Support Intervention goal is to enhance families’ abilities to engage with the medical team over time around overall goals of care during prolonged ICU hospitalizations. The Clinician Education Intervention goal is to provide doctors and nurses with evidence-based training in the communication skills that promote longitudinal discussions with parents and other clinicians about goals of care. The System of Decision-Making goal is to better understand and impact the medical team’s ability to consistently and collaboratively revisit goals of care when making decisions for chronically critically ill infants.