Web-Based Dementia Palliative Care Assessment and Resource Hub

This project aims to improve access to foundational palliative care assessment, information and resources for family members and friends caring for people living with dementia. We plan to create an interactive web portal that will contain: a) instruments for care-giver self-assessment of stress, readiness, preparedness, and activation for assuming increasingly complex caregiving tasks and for managing the care recipient's health while maintaining personal wellness; b) a personalized, assessment-based caregiver care plan, including tailored resilience coaching and links to relevant resources from the National Library of Medicine; and c) a targeted list of discussion questions for caregivers and health care providers. We propose to create and pilot test the portal with focus groups of family caregivers and clinicians. This project will allow for a fast transition from generating research evidence to broadly disseminating best practices and getting these much-needed tools into the hands of caregivers and clinicians of people living with dementia.